Mrs. Jackson Cooks

Life through food

Hope Osborne – quick update

on February 15, 2012

Hey guys, as promised, I’m updating here from the updates on the facebook group. Hope’s mum has just posted this. Please do donate and support this beautiful family through such a hard time. Here’s the link again to donate https://www.givealittle.co.nz/cause/hopeosbornesociety

Hope is very tired right now. In herself she’s not really much different to how she was last week except that today she has been much more sleepy and she has seemed confused at times. She didn’t get a lot of sleep last night and had quite a bit of extra medication this morning for pain which could account for it, but trying to account for it doesn’t really mean much. Her body is slowing down and it’s difficult to watch. We’re still trying to come to terms with the reality of actively not treating her, knowing the implications of that, but knowing that it’s really the best thing we can do for her. She’s mostly comfortable and we’re still getting some lovely moments from her.

Hope’s fifth birthday is in four days and we’re still not sure if she’ll make it. A month ago I would have said it’s not likely but today I’m quietly holding my breath, not making too many plans but hoping that she will. In the grand scheme of things it really doesn’t matter at all that it’s her birthday. But in other ways it’s hugely meaningful. I am so grateful to have had this beautiful little girl in my life. It hasn’t been an easy road to take but her very existence has brought us such joy and has changed me deeply.

There’s not really much more we can say right now.

Thanks for continuing to support us through this.

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